Monday, August 15, 2016

Houston: Take-Aways

This isn't Amos, but it is in Houston.

So, last weekend and early last week was the final time (to our knowledge) that Amos will need to go to Houston for medical-related reasons. There were a few take-aways, mostly positive.
  • The neuropsych evaluation revealed no abnormal or delayed development. That isn't to say that he won't in the future, but up to now, we have a lot to be thankful for.
  • There have been no observed seizures since he went on medication the on the day following his first seizure, so there have been only two recorded seizures. His VEEG on Tuesday, however, revealed sub-clinical seizure activity in his brain. In the near future this means that he'll either need an increased dosage of his present medication or a second anti-seizure medication. I'm glad it was caught early.
  • In the intermediate-to-distant future there will be no return to China. We had been considering weaning Amos off his medication, as he hasn't had a seizure for more than two and a half years, but after the aforementioned VEEG, that plan is kaput. Unless Chinese treatment for this disorder improves dramatically, we face the reality that we must stay in the U.S. in an ongoing struggle to control what can't be cured.
  • As per FDA requirements with regards to Amos's medication, Amos has had to see a optometrist every three months. That requirement has been lifted, which makes for two or three fewer optometrist appointments per year. More to be thankful for!
  • I'm simply glad that I don't have to drive in Houston traffic again until I choose to do so. We spent something like 80 minutes on the 17 mile-drive on I-610. I won't miss that.
So that's about it. Goodbye, Houston. We appreciate the wrok of many doctors and techs, and we are forever grateful to friends who've helped us with home-stays and such, but I won't miss the long drives and long days.

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